Learn from my regrets

Posted by Anne Browning, With 0 Comments, Category: Grief, Robby's Voice, Support, Talking to kids,

REGRETS, I’VE HAD A FEW….

I was listening to my iPod the other day, and “My Way” by Frank Sinatra played. This verse always grabbed me;regretwoman

“regrets, I’ve had a few, but then again, too few to mention…”

I always wanted to live life that way – going for it. Maybe I swung and missed a few times, but no regrets.  I’d rather swing and miss than not swing at all.  I know Robby lived life that way and his favorite phrase, Carpe Diem, was tattooed from armpit to hip.  He lived his way with very few regrets.  In his short 20 years, he did so much. More importantly, with this short time, he lived his dream which was to be a United States soldier.

Unfortunately, as a parent that has lost a child to an overdose, I am not able to live without regret. Regret is now sewn into the fabric of my life, and as my mind wanders back over the years, I think of every time that I was not the best Dad I could be, and it hurts.  How did I make him feel in that moment?  Did that contribute to his need to use?  Why did I act that way?

As he battled his addiction, I remember those frustrations and times when anger overtook me and things were said. Did that push him to use?  Did that trigger a relapse?  These memories just seem to pop up every now and then, and when they do, they are so hard to shake.

Things that trigger regret many parents understand

There are triggers as well (not exclusive to addicts). There is the bus station where he parked his motorcycle when the engine froze from lack of oil.  Where I let my anger deal with it in a way that was less than how I, as his Dad, should have handled it.  There was the day when we dealt with relapse and I was frustrated and he looked at me and said “don’t give up on me Dad…”  How could I have made him feel like that?  There was the day we spent at Padua this year speaking.  Robby wanted to look at Padua for school, but we discounted that based on a lot of things that as parents you have to consider.  What if he went there?  Would he have avoided the addiction?  Would he still be with us today?  WHY DID WE NOT LET HIM GO THERE?

These are the things that run through my head constantly. These are the inescapable thoughts driven by guilt and loss that cloud my mind constantly.  These are the fears that this disease preys upon when parents are faced with this disease and the difficult decisions that come with the journey through addiction; decisions that are counterintuitive for parents, decisions that hurt us more than they hurt them.

ROBBY’S VOICE exists, in part, because we do not want any parent to live with “this.” It is the ultimate groundhogs day, repeating itself as vividly as it was when it happened.  Only now, there is loss tied to it; a consequence if you will that can’t ever be rectified.  “I’m sorry” is not enough because forgiveness is trumped by the questions and the permanency of death.

The only advice I can give

If you have lost a child, and you struggle with these same thoughts, I have no answers. Just know that you are either not crazy, or we are both crazy, but we can be crazy together.  If you have a child struggling with addiction, don’t hide from it. Face it.  Use every tool there is because there are no guarantees.  Every decision may be right or wrong and that is the quandary.  Find a strong family group and surround yourself with those that will understand and will stand with you.  If you have a child not addicted, learn, be aware, know this can happen in any home, and talk to your kids early, often and right.

REGRETS,  yes, I’ve had a few, and that few are too long to list. My son passed away. We lost him. I use these words because I can’t say the words “my son is dead.”  For some reason, that phrase is a gut punch that covers me in darkness when I even think it.  For me, passed and lost are not as final. They shield me a bit from the reality that my son is dead and I did not do what needed to be done to protect him, to save him.

You don’t want to live with that and all that comes with it. So do something, today.


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Learning to Hope through Cornerstone

Posted by Rob Brandt, With 0 Comments, Category: Announcements, Grief, Robby's Voice, Tags:

I don’t like the word hope.hope

To me, when we hope, we give control to someone or something other than ourselves.  It’s a weak word. I prefer faith. Faith means I believe, I know it will happen.  It means I am in control.  It’s a strong word.

Then I learned about grief.  Not just any kind of grief, but the most devastating, heart wrenching, crippling kind of grief that exists.  The kind of grief that makes you wish for the end, your end. The kind of grief that is forever.  I learned about faith and I learned about hope.

I remember it clearly on that late Friday morning, October 21st, 2011.  We just returned from the high school where we told Jaclyn and Nolan about their brother. Where we ripped their world apart.  I stood in my house as it filled with people.  Family and friends. The support was amazing.  But it didn’t matter as nobody could help me.  I was broken, numb, confused.  I had no idea what to do.  How do you move, how do you recover, how do you live?  I had no answers, and worse, I knew in that moment that if I had no answers for myself, I had no capacity to help my family.

My faith in God did not waiver. My faith in myself was gone.  I was helpless.  I was hopeless.

Herein enters Hope

A year earlier, I had been introduced to Cornerstone of Hope  by a friend who did volunteer work for them (This is a story for a different day…a story about how God put all the pieces in place).  But I remembered.  After the funeral and things got quiet and life returned to normal for those that had carried us each day, we were left to face our life.  We would have to face all the firsts, and they were coming fast.  Halloween, Robby’s favorite day, Thanksgiving, Christmas, his birthday. All would be upon us within the first 60 days.  How do we do this?  I looked at my family and they looked to me; I had no answers for them.

Tattered, beaten, humbled, I turned, we turned to Cornerstone, and in that very dark moment, we saw a light.

Carla and I attended counseling together while Cornerstone sent counselors to the high school each week to meet with Nolan and Jaclyn.  We had been given a lifeline, an angel that would help us deal with what we were now in the middle of.  We survived the holidays.  Group counseling followed for all of us, and slowly but surely we started to walk forward, learning how to adapt to our new normal.

Mark and Christi Tripodi are the founders of Cornerstone of Hope.  They are selfless givers.  They are heroes that have built an organization that catches us in our darkest moments.  As we fall into the depths, they say we are here, we will catch you, we will hold you, and we will help you find the light in the absolute darkness.

Cornerstone of Hope saved us.

There is no other way to say it.  We continue to rely on what they taught us, and each year in December, we head back for the candle ceremony where we share tears and memories with others that have been lost in their loss, and saved by this group.

I hate the word hope, but I learned that in loss and in grief, it is all we have.  We are not in control. We don’t have all the answers and we are at our weakest.  My faith in God never wavered, but I needed hope.  I needed to count on someone else to do what I could not. I needed to hand control over to someone else.

At the lowest moment of my life, they were there.  They gave me hope and that hope turned back into faith… the belief that I could move forward. That I could live again…that I could find a new normal.

Cornerstone did for my family what I could not.  They were the rock for Carla, Jaclyn and Nolan.

They saved me, they saved my family, and they continue to be a cornerstone of our ability to move forward each day.  They are THE CORNERSTONE OF HOPE.


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Stigma of Addiction is our Greatest Enemy

Posted by Rob Brandt, With 0 Comments, Category: Grief, Robby's Voice, Stigma, Tags:

Have you ever had your child look at you and say “I didn’t ask for this. I don’t want this,” with fear and pain in their eyes?  I have, and there how-did-the-stigma-of-addiction-begin-532935_180x180was nothing I could do to save him.  I could be talking about cancer or any diabetes or any other chronic or life threatening disease, and actually, I am.  I am talking about drug addiction.

As a society, we put a stigma on addicts because we believe there is something dirty about them. Maybe it’s because drugs are illegal or we call it their choice.  Maybe it’s because we don’t understand addiction, and why would we.  We don’t get educated on it until after we are impacted.  As a result, we have an epidemic that continues to grow, and a disease that impacts virtually every family in this country in some way.  You say not you. I say you’re either not being honest or you just have not figured out who yet.  I say this because I know.  I have lived this.  I have had to face it.  I have had to witness the pain and devastation. And now, because of my ignorance, I have to live with the loss.

Old stigmas are stealing lives

What we say about addicts we would never think to say to a person with a “real disease.”

  • We say it’s their choice.
  • We say just quit.
  • We say they deserve what they get.
  • We say they know better.

 

We say these things about addicts, but yet we have compassion for cancer patients and diabetics.  We feel badly for them even when maybe their choice to smoke or have poor eating habits led to their diseases.  We have empathy for them because we understand these diseases, we have been educated, and yes, killing yourself through cigarettes or food is perfectly legal.

With addiction, even though we have failed to educate kids and families, we hold them in disdain. Our healthcare system doesn’t want to pay for the proper care, the same care any other chronic disease would get.  There are no fund raisers or national foundations, only the dark black hole of addiction and its stigma.

Learn from parents like us

There was a day, a time in my life when I held many of these beliefs. There was a time in my life I was ignorant.  I did not understand the disease or its impact.  There was a day that I would cast a stigma down upon the addict because they did it to themselves.  Then I learned, and I learned the hard way.  I learned about the disease.  I learned about the pain.  I learned about the desperation and hopelessness.

I learned too late. I learned after my son became an addict, a victim of a disease, that neither he nor we were ever really educated about.  I learned too late.  I learned after my son died and there was nothing I could ever do to fix it.   Because I learned to late, my family will live with a loss that will forever leave a hole in our hearts and souls.

I learned too late, but you don’t have to. I know, it’s never your kid…until it is.  Then what? 

 


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Event Management Volunteer Needed

Posted by Anne Browning, With 0 Comments, Category: Announcements, Robby's Voice,
vo.unteer

The need to reach more and more parents, students and children with our message to live a substance-free life has reached a critical point. The demands on our organization are growing and although we feel both excited and humbled, we know we can’t do this alone.

A channel for your passion and purpose

Do you have experience with event management, particularly with not-for-profit organizations? Can you collaborate and generate new ideas while also bringing volunteers together to develop and execute on-the-ground? And more importantly, do you have a passion for supporting this cause and see lives changed for the better? If you do, and could commit your valuable time and expertise to our cause, we’d like to talk to you and explore both our organization’s needs and your skills and ideas.

Please email our Board Secretary and 5k Race Director, Angela Fanara at amarysiak@hotmail.com for an initial conversation.  We would be so grateful for your service and know you will feel a great deal of satisfaction helping with the Robby’s Voice mission.


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Progress at the pharmacy

Posted by Rob Brandt, With 0 Comments, Category: Opiates, pharmacy, Prescription Drug Abuse, Robby's Voice, Tags:

Do You Know What OOARRS Is?pharmacy

OARRS is the system used in Ohio by Doctors and Pharmacists to track prescription medication traffic.  It lets us know what doctors are prescribing or perhaps over-prescribing as well as who may be attempting to obtain medication for resale or to support their addiction.  It is supposed to be used every time a Doctor writes for certain medications; it is not always used.  Here you’ll find a link to the practicum for Pharmacists as to when they need to be checking OARRS.

This is an important tool used in battling this epidemic, and it is working.  We are seeing reductions in abusive prescribing but we must sustain it.  Ask your Pharmacist next time you’re in how it is working for them. We’d love to hear what feedback you receive.


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